Speak YOUR

truth

ABOUT MANAGING YOUR HEMOPHILIA A

Are you making trade-offs by compromising on bleed protection or ease of administration?

Limiting activities within a blood cell
Too many infusions within a blood cell
Painful administration blood bubble
Unreported  bleeds in a blood cell

aA study asked people with hemophilia how many bleeds they had in the last 2 weeks, and then checked if the answers matched what was recorded in their medical records. These results might show that some bleeds are not always reported to the doctor. Limitations of this data may include patient's willingness to report their bleeds, whether patients accurately recalled their number of bleeds, or the correctness of their medical records.

Nikola lives with Hemophilia A

ARE YOU SPEAKING UP ABOUT YOUR TREATMENT CHALLENGES?

Make the most out of your doctor visits by having deeper discussions. Manage hemophilia A by addressing what is not working, so you can talk to your doctors about challenges you are experiencing now and stay ahead for the future.

Speak up about all aspects of your care:

  • Breakthrough bleeds
  • Administration concerns and how often you take treatment
  • Any compromises you're making

Luke lives with Hemophilia A

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WHAT ARE TREATMENT TRADE-OFFS?

Trade-offs are part of everyday life and may mean making difficult choices. With hemophilia A, it can mean accepting the difficulties of treatment administration to prevent bleeds or sacrificing bleed protection for easier administration.

While hemophilia therapies have improved, researchers are exploring ways to prevent bleeds with different administration options to help address these trade-offs.

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Are you still
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IS YOUR CURRENT treatment ADMINISTRATION CHALLENGING?

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